IiME/UCL Rituximab Trial - News January 2014

 

The Invest in ME/UCL Rituximab Clinical Trial

An International Event

 

January 2014

When Invest in ME announced in June that we were planning a UK trial of rituximab for ME there was a great deal of interest raised.

The rituximab trial follows the exciting work which has been, and is being performed in Norway by the Haukeland University hospital researchers Professor Olav Mella and Dr Oystein Fluge.

It is worth repeating some of the sentiments expressed a while ago in an earlier news post.

The response from around the world emphasises how great the need is for high-quality biomedical research into ME. This has been sorely lacking for a generation with funding mostly being squandered on psychological interventions which have no hope of finding cause or making available effective long term or permanent treatments.

The research work in Norway was backed up by impressive and dedicated patient advocacy by the Norwegian ME Forening which has raised the profile of ME in Norway and throughout the world. Their tireless work encouraged IiME as did the more recent success of the fantastic Norwegian ME and You campaign to raise funds for the Norwegian research. These efforts have created a real sense of hope amongst patients.

Our wonderful supporters have risen to the occasion and their efforts have validated the decision to initiate the UK trial with UCL.

The imaginative Letís Do It For ME campaign has continued to produce ideas to raise funds and awareness and The MATRIX is an example of a unique method of achieving both.

We have had donations from around the world, ranging from £1 to £3,000.

And a very generous foundation has donated £25,000 already and pledged £200,000 toward the clinical trial. We are very grateful for this extraordinarily generous offer from the donating foundation. It is an amazing gesture from compassionate and caring people who want to make a difference.

It allows the hopes of many patients to become a reality Ė allows a vision to be maintained that there is a future for ME patients and that we, patients and families and supporters, can make a difference.

We have also had fantastic moral support from a great many.

A few good people can change things. One event can change everything.

As such, IiME and our supporters have managed to initiate and organise something which many thought was not possible.

 

This is an international event and is followed by many around the world.

Our objective is to ensure that a clinical trial of rituximab is allowed to be performed by the best researchers possible and to ensure that this trial makes a valuable contribution to the collective ME research pool.

As we stated before we believe in achieving results by the most direct method, where possible.

For IiME the issue of making rapid progress in ME research is important, it is personal. The need is here - the need is now.

We continue our efforts to raise the remaining funds.

 

We thank all those who are supporting this trial and we will continue to provide information on the status of the trial as we progress.

We continue to welcome support.

Please contact IiME directly if you or your organisation would like to assist or contribute. 

If anyone would like to ask any questions about the UK rituximab trial then please use the Contact form on the rituximab web site [4].

A status is available [5].

With this trial we can take a huge leap forward in ME research.

If you are also interested in the other research projects that Invest in ME is  organising and/or funding please see our main website and free newsletter [6].

Letís Do Research! Letís Do It For ME!

 

Thank You.

 

 

 

 

 

 

 


UK Ireland Norway
Sweden
Belgium

LDIFME

 

 

 

 

 


Finland

Holland

Germany

Switzerland

France

IMET

 

 

 

 



 


 

Australia

New Zealand

USA

Canada

Czech Republic

Netw.MESH London

 

 

 

 

 

 

 






       

Satyananda Yoga Centre

Netw.MESH London

References:

 

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Last Updated: January 2014  

www.investinme.org